You see, Brianna doesn't sleep. At least, that's how it feels sometimes. She definately does NOT go to sleep before 10pm. And then, if it's a good night, she'll wake up once or twice before seven. But Garin is awake at 6am on the DOT.
Bad nights. Well. I'd like to say they're few and far between. But they come and go every few days. We had TWO WEEKS where she didn't sleep for longer than an hour, and it took at least an hour to get her back to sleep.
We're testing and trying all sorts of different things. Sometimes they work, sometimes they don't. The weighted blanket seems to be helping a bit. She doesn't seem to need to be totally passed out any more when we lay her down, as long as we cover her with the weighted blanket. And it does seem to be helping her sleep longer - as long as her "other" issues aren't bothering her that night.
The problem is there are several things affecting her sleep, and it's hard "treating" them all at once. There's the sensory processing disorder issues (for which we got the weighted blanket). There's the reflux (sometimes the medicine helps, sometimes it doesn't) and I got a wedge to help elevate her, but it's not very soft, and she likes soft (see the sensory issues). And then there are nights when she has horrible gas, and she can't stop moving. This seems to be helped as long as we make sure she gets enough Mirolax earlier in the day. But sometimes not. And sometimes it's like her little brain just doesn't want to shut down. So another question to bring to the neurologist is the possibility that maybe she has some seizures going on. So I'm going to ask about an overnight EEG. We'll see how long they will deflect me on doing that. Although the neurologist seems to be quicker about testing for things than her other doctors.
We're FINALLY getting back in tomorrow with the ped GI doctor about getting her a scope and/or a barium study done. I'm hoping that will let us know what's really going on inside of her.
She's such a happy sweet girl during the day. People have such a hard time believing that she ever gives us a hard time. I tell them to swing by around midnight or nap time.
But here are some pictures of my sweet babies!
Garin built this all by himself, can you believe it? ;)
She's just so stinkin' cute!!
Garin went down to the mailbox with the keys and got the mail ALL BY HIMSELF! What a big boy!
